Mar. 20th, 2009
Update on Andrea from Mom
Mar. 20th, 2009 01:58 pmHello everyone,
I'm back with a quick report on Andrea, again. We're continuing to
see little improvements: she is able to do a "leg lift" from the
knee this week, has a little more wiggle in her toes, her neck is
getting stronger and her range of motion in her arms is increasing.
She is still not able to hold her head up when she is in a totally
upright position, so she is using a slant-back wheelchair when she is
up. Getting her into the wheelchair is still very frightening to
her--we use the Hoyer lift--a mechanical lift with a sling-to move
her from the bed to the wheelchair and back. The "seat" of the sling
is open and she tends to slide down in it a bit so that she feels she
is going to fall, so it is a bit trying to get her into the chair; it
is getting better. Her movements with her arms aren't very
controlled, yet, and I had to pad the side rails because she keeps
whacking her arms on them. She's also banged her chin a couple of
times with her hands--which isn't a problem unless she has the hard
hand splints on! Speech therapy is going to work with her a couple
times a week on swallowing and we are working on tongue exercises
with her in between--did you know that your tongue can get weak when
you don't use it? She also has arm and leg exercises to do every
day, so the days can be pretty busy. She is sleeping a little better
at nights, but she is often awake by 4 a.m., so if you don't go to
bed early, you don't get enough sleep--just ask Mike! Mike is still
having trouble with his colitis, so he is really having problems
sleeping! The doctor said they may try a new medication for him--an
injection that is done once a month, so hope that will help him.
I'll keep you posted!
Jan
I'm back with a quick report on Andrea, again. We're continuing to
see little improvements: she is able to do a "leg lift" from the
knee this week, has a little more wiggle in her toes, her neck is
getting stronger and her range of motion in her arms is increasing.
She is still not able to hold her head up when she is in a totally
upright position, so she is using a slant-back wheelchair when she is
up. Getting her into the wheelchair is still very frightening to
her--we use the Hoyer lift--a mechanical lift with a sling-to move
her from the bed to the wheelchair and back. The "seat" of the sling
is open and she tends to slide down in it a bit so that she feels she
is going to fall, so it is a bit trying to get her into the chair; it
is getting better. Her movements with her arms aren't very
controlled, yet, and I had to pad the side rails because she keeps
whacking her arms on them. She's also banged her chin a couple of
times with her hands--which isn't a problem unless she has the hard
hand splints on! Speech therapy is going to work with her a couple
times a week on swallowing and we are working on tongue exercises
with her in between--did you know that your tongue can get weak when
you don't use it? She also has arm and leg exercises to do every
day, so the days can be pretty busy. She is sleeping a little better
at nights, but she is often awake by 4 a.m., so if you don't go to
bed early, you don't get enough sleep--just ask Mike! Mike is still
having trouble with his colitis, so he is really having problems
sleeping! The doctor said they may try a new medication for him--an
injection that is done once a month, so hope that will help him.
I'll keep you posted!
Jan