Andrea update from Mom
Apr. 15th, 2009 09:52 amHere it is, Saturday, and I still haven't gotten this note written.
When I get home on Wednesday evening, the treadmill seems to speed up
and I don't always remember to sit down and get this written. Andrea
continues to improve a little each week. It's a little harder to
describe something new, but she is moving her legs more and with
greater strength; she is staying up in the chair for longer periods
(2-3 hours) and we are making some changes in her tube feeding to try
to allow her to get hungry and be willing to eat a little. The
speech therapist says she is able to chew and swallow safely now,
but her stomach has shrunk with the continuous tube feeding and she
gets full really easily, so coaxing her to eat is a bit of a
challenge. She was scheduled to go to McMinnville for her third
Cytoxan treatment--yes, they were finally able to make the
arrangements to have it there! There is a wheelchair bus in the
county and Marilyn found out that it would come to there place to
pick up, so she and Andrea were going to go in for the treatment on
Friday--I'll have to let you know next week how it went.
Mike has not had a good week; his colitis is acting up and he was
afraid it might have progressed to pancreatitis again. He had blood
work on Wednesday that was within normal limits, so he was relieved
about that. Marilyn called me Thursday night to talk a bit about
Andrea and said Mike was feeling a bit better. He had had a fever on
Wednesday night, so I am wondering if he had picked up some "bug"
that was adding to his misery. Because of the fever, he won't be
able to take his next dose of medicine for his colitis for a week (it
was to have been on Friday this week), but, if it was something else
making him feel badly, hopefully he will begin feeling a bit better now.
I'll keep you posted.
Jan
When I get home on Wednesday evening, the treadmill seems to speed up
and I don't always remember to sit down and get this written. Andrea
continues to improve a little each week. It's a little harder to
describe something new, but she is moving her legs more and with
greater strength; she is staying up in the chair for longer periods
(2-3 hours) and we are making some changes in her tube feeding to try
to allow her to get hungry and be willing to eat a little. The
speech therapist says she is able to chew and swallow safely now,
but her stomach has shrunk with the continuous tube feeding and she
gets full really easily, so coaxing her to eat is a bit of a
challenge. She was scheduled to go to McMinnville for her third
Cytoxan treatment--yes, they were finally able to make the
arrangements to have it there! There is a wheelchair bus in the
county and Marilyn found out that it would come to there place to
pick up, so she and Andrea were going to go in for the treatment on
Friday--I'll have to let you know next week how it went.
Mike has not had a good week; his colitis is acting up and he was
afraid it might have progressed to pancreatitis again. He had blood
work on Wednesday that was within normal limits, so he was relieved
about that. Marilyn called me Thursday night to talk a bit about
Andrea and said Mike was feeling a bit better. He had had a fever on
Wednesday night, so I am wondering if he had picked up some "bug"
that was adding to his misery. Because of the fever, he won't be
able to take his next dose of medicine for his colitis for a week (it
was to have been on Friday this week), but, if it was something else
making him feel badly, hopefully he will begin feeling a bit better now.
I'll keep you posted.
Jan